Flower Power, de rozentuin in Bokrijk.

Uiteraard ga je hier best naartoe als de rozen in bloei staan, maar Bokrijk heeft zoveel te bieden dat elk tijdstip wel gepast is, zelfs oktober in volle herfstperiode. http://www.bokrijk.be/nl/wat-doen/park/wandelen#tab-nav

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Wat is ataxie ? Mary Liebert Facebook (Eng)

I put together an educational document about ataxia. Hope you find it useful in explaining what ataxia is. Sept. 25th is International Ataxia Day. Passing on a bit of information to someone who doesn’t know what ataxia is, is helping to educate the world about this disorder. Thanks, Mary

WHAT IS ATAXIA?

• ATAXIA is derived from the Greek word ataxis which means “without order.”

• Ataxia is …. A term used to describe a group of neurological disorders that cause problems with balance and coordinated movement.

• Ataxia also causes symptoms that affect: vision, swallowing, and speech.

• Ataxia is most often caused by loss of function in the cerebellum. (the part of the brain that controls movement)

• Ataxia symptoms can be similar to: *being drunk can cause symptoms of ataxia or *spinning around and around like children do, can cause ataxia symptoms.

• Ataxia can strike at any age. (too often, children and young adults)

• Ataxia – There are three classifications: Acquired, Hereditary, and Sporadic.

• 1) Acquired Ataxia is …. There was an event that caused the person to have the symptom of ataxia. Some examples include: head trauma, stroke, brain tumor, severe viral infection, and exposure to certain drugs or toxins.

• 2) Hereditary Ataxia is …. When there is a gene defect or mutation. This type of ataxia is divided into two groups: Dominant and Recessive. (there are a lot more detailed definitions for these two ataxias, but I’m only giving you the very basic ones here)

• Dominant Ataxia is …. When only one of the parents has the effected gene and it’s passed on.

• Recessive Ataxia is …. When both parents have the gene and it’s passed on.

• 3) Sporadic Ataxia is …. When the cause is unknown and there is no family history.

• *Most of the ataxias are progressive. (symptoms increase in scope and severity)

• *The rate of progression varies for each type of ataxia. It can also very between family members with the same type of ataxia.

• *Too often the earlier the onset of symptoms, the faster the rate of progression.

• Currently there is no cure for ataxia. (some of the acquired forms have been treated)

• There are no medications which treat or slow the progression of ataxia. (there are some medications which may help some of the symptoms of ataxia)

• Despite this a person with ataxia can: exercise and cultivate a caring network with family, friends, support groups, social media and advocacy organizations to gain knowledge, resources, and a sense of belonging.

• If you want to learn more about our journey you can reach out to the National Ataxia Foundation.

• Thank You and pass the word on about ataxia.